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Inspirational and informative reading on palliative care and caregiving

We recommend the following books and journal articles for education, information, and comfort. Click a link below for a list of books and articles on a topic that interests you.

 

Palliative care

A Life Worth Living: A Doctor’s Reflections on Illness in a High-Tech Era
By: Robert Martensen

Dying Well: Peace and Possibilities at the End of Life
By: Dr. Ira Byock (1997)

Palliative Care: Transforming the Care of Seriously Ill
By: Diane E. Meier

The Four Things that Matter Most
By: Dr. Ira Byock (2004)


Caregiving

A Dignified Life: The Best Friends Approach to Alzheimer’s Care, A Guide for Family Caregivers
By: Virginia Bell and David Troxel (2002)

An Uncertain Inheritance: Writers on Caring for Family
By: Nell Casey (2007)

Caregiving: The Spiritual Journey of Love, Loss, and Renewal
By: Beth Witrogen McLeod (2000)

Chicken Soup for the Caregiver's Soul: Stories to Inspire Caregivers in the Home, the Community and the World (Chicken Soup for the Soul)
By: Jack Canfield, Mark Victor Hansen, LeAnn Thieman, and Rosalynn Carter (2004)

How Can I Help? Stories and Reflection on Service
By: Ram Dass and Paul Gorman (1985)

Learning to Fall: The Blessings of an Imperfect Life
By: Philip Simmons (2003)

Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
By: Carol D. O'Dell (2007)

Passages in Caregiving
By: Gail Sheehy

Share The Care: How to Organize a Group to Care for Someone Who is Seriously Ill (Revised and Updated)
By: Cappy Capossela, Sheila Warnock, and Sukie Miller (2004)

The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life (4th Edition) (A Johns Hopkins Press Health Book)
By: Nancy L. Mace and Peter V. Rabins (Paperback - October 9, 2006)

The Caregiver Helpbook: Powerful Tools for Caregivers
By: Marilyn Cleland, Vicki L. Schmall, Marilynn Studervant, and Leslie Congleton (2006)

The Comfort of Home: A Complete Guide for Caregivers (Comfort of Home, The)
By: Maria M. Meyer and Paula Derr (2007)

The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent
By: Barry J. Jacobs

The Illness Narratives: Suffering, Healing, and the Human Condition
By: Arthur Kleinman, PhD


Compassion fatigue

Breath of Relief: Transforming Compassion Fatigue Into Flow
By: Karl La Rowe

Compassion Fatigue: Coping With Secondary Traumatic Stress Disorder in Those Who Treat the Traumatized
By: Charles R. Figley

Help for the Helper: The Psychophysiology of Compassion Fatigue and Vicarious Trauma
By: Babette Rothschild

Leading From the Heart: Choosing Courage Over Fear in the Workplace
By: Kay Gilley

The Alchemy of Fear: How to Break the Corporate Trance and Create Your Company’s Successful Future
By: Kay Gilley

The Fable of the Bridge
By: Edwin Friedman

The Miracle of Mindfulness: An Introduction to the Practice of Meditation
By: Thich Nhat Hanh

The Truth About Burnout
By: Christina/ Leiter, Michael P. Maslach

To Weep For A Stranger: Compassion Fatigue in Caregiving
By: Patricia Smith

Wherever You Go, There You Are: Mindfulness Meditation in Everyday Life
By: John Kabat-Zinn


Moral distress

American Association of Critical-Care Nurses. (2004). “The 4 A’s to Rise Above Moral Distress.” American Association of Critical-Care Nurses.

Austin, Wendy, et.al. (2003). “Unable to answer the call of our patients: Mental health nurses’ experience of moral distress.” Nursing Inquiry,10 (3), 177-183.

Austin, Wendy, et.al. (2005). “To Stay or To Go, To Speak or Stay Silent, To Act of Not To Act: Moral Distress as Experienced by Psychologists.” Ethics and Behavior,15(3), 197-212.

Everly, George S. & Mitchell, J.T.(1997) “Critical Incident Stress Management (CISM). A New Era and Standard of Care in Crisis Intervention.” Ellicott City, MD: Chevron Publishing.

Gutierrez, Karen M. (2005). “Critical Care Nurses’ Perceptions of and responses to moral distress.” Dimensions of Critical Care Nursing. September/October , 24 (5), 229-241.

Kalvemark, Sofia, et.al.(2004). “Living with conflicts – Ethical dilemmas and moral distress in the health care system.” Social Science and Medicine, 58, 1075-1084.

McCarthy, Joan & Deady, Rick. (2008). “Moral distress reconsidered.” Nursing Ethics,15

(2), 254-262.

My Sister’s Keeper
By: Jodi Picoult

Powell, L. H., Shahabi, L., & Thoresen, C. E. (2003). “Religion and spirituality: Linkages to physical health.” American Psychologist, 58, 36-52.

Sullivan, M. D. (2003). “Hope and hopelessness at the end of life.” American Journal of Geriatric Psychiatry, 11, 393-405.


Spirituality and end-of-life issues

Arztliche Seelorge
By: Viktor Frankl

Becoming Adult, Becoming Christian: Adult Development and Christian Faith
By: James W. Fowler

Escape from Paradise: Evil and Tragedy in Feminist Theology
By: Kathleen Sands

From Death-Camp to Existentialism
By: Vikto Frankl

Hospital Ministry: The Role of the Chaplain Today
By: Lawrence Holst

Life’s Meaning in the Face of Suffering: Testimonies of Holocaust Survivors
By: Teria Shantall

Man’s Search for Meaning
By: Viktor Frankl

Man’s Search for Ultimate Meaning
By: Viktor Frankl

Night
By: Elie Wiesel

Process Theology: And Introductory Exposition
By: John B. Cobb, David Ray Griffin

Psychotherapy and Existentialism: Selected Papers on Logotherapy
By: Viktor Frankl

Spirituality, Suffering, and Illness
By: Lorraine M. Wright

Suffering and Illness: Insights for Caregivers
By: Fay Carol Reed

The Doctor and the Soul: An Introduction to Logotherapy
By: Viktor Frankl

The Human Quest for Meaning: A Handbook of Psychological Research and Clinical Applications
By: Paul Wong

The Nature of Suffering and the Goals of Medicine
By: Eric Cassell

The Practice of Pastoral Care: A Postmodern Approach
By: Carrie Doehring

The Psychology of Religion: An Empirical Approach
By: Bernard Spilka

The Psychology of Religion and Coping
By: Kenneth Pargament

The Pursuit of Meaning
By: Joseph Fabry

The Transforming God: An Interpretation of Suffering and Evil
By: Tryon Inbody

The Unconscious God: Psychotherapy and Theology
By: Viktor Frankl

The Unheard Cry for Meaning: Psychotherapy and Humanism
By: Viktor Frankl

The Will to Meaning: Foundations and Applications of Logotherapy
By: Viktor Frankl

Tragic Vision and Divine Compassion
By: Wendy Farley

Viktor Frankl’s Contribution to Spirituality and Aging
By: Melvin Kimble